Past Events

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CLS Family Gatherings

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CLS Talks

RaiseRight Fundraiser Discussion

Q4 2025 CLS Talks Parent Zoom Session – CLS Fundraiser – RaiseRight

A CLS parents’ information session on our new RaiseRight fundraiser was held during this quarters CLS Talks session. Jennifer Babcock presented the material to the group. This ongoing fundraiser will help the CLS Foundation fund our newsletters (printing/mailing) as well as future research opportunities that are currently being discussed. It is easy to sign up for RaiseRight and you can help the Foundation by providing a portion of the purchases you are already making (Amazon, Walmart, Starbucks, Disney, TJ Maxx, Lowes, Target, Food Lion, etc.)

• Originally recorded on Thursday, October 16, 2025, 6:00 PM Central Time zone

A video of the material can be seen here.

Transition to Adulthood

A parent led panel discussed several challenges as our CLS children age to adulthood including Sexuality, Puberty, Building an Adult Day Program, Getting our CLS Adults into a ‘Forever Home’, Healthcare options, Social Security and Guardianship.

• Originally recorded on Tuesday, May 13, 2025, 6:00 PM Central Time zone
• Transition to Adulthood for Individuals with CLS 11-21-2024

Sanford Research CoRDS Rare Disease Registry

Sanford Research: Polly Gill, Research Project Manager Coordination of Rare Diseases at Sanford (CoRDS) presented an informative session on the CoRDS registry and how it is used with Researchers

• Presented on Tuesday, February 18, 2025, 6pm Central Time zone

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Females with CLS: Childhood with a “Hidden” Disability

Parent Abbey Houser discussed her journey as a mom as she searched for a diagnosis for her daughter

• Originally recorded on Thursday, November 19, 2024, 7:00 PM Central

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Recreational Activity Opportunities for Adults with CLS

Discussion led by Mo Guy and Kristi Smith, moms of CLS Adults shared their experience with coordinating with people in their community to ensure recreational activities are provided for people with disabilities

• Originally recorded on Tuesday, August 27, 2024, 6:00 PM Central

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