-Deann, AR
‘When I found the foundation’s original website I discovered all these wonderful families who love someone with CLS! (Thank you, Mary!) It opened a world of expert knowledge from those who knew more than a geneticist about the possibilities with this diagnosis. You all have been such a support for our family in the tough times, and celebrate the small milestones with us!
I enjoy the newsletter, introducing the new members, and appreciate the research updates.
The Family Gatherings are a highlight for us, we love seeing you in person, and being in a room with others who “get it” and roll with the behaviors is a breath of fresh air.’
marnid
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