The following specialty care should be considered:

• Cardiac studies to begin during childhood
  • Repeated every 5-10 years
• Monitor for the development of progressive scoliosis/kyphoscoliosis
  • Intervention to prevent progression as appropriate
• Monitor for potential Sleep Apnea
• Regular Hearing and Vision screenings
• Regular Dental Care
• Annual General Practitioner examinations/lab work to ensure good health
• Neurologist Specialty examinations for behavior, seizure and/or Drop Attacks/Stimulus-Induced Drop Episodes (SIDEs) management
  • Allows early intervention to minimize occurrence of triggering stimuli
  • Antiepileptic and behavioral management medication may be need
• Social resources may be desired to support individuals with CLS

The following characteristics should be suspicion for narrowing of spinal canal or spinal cord compression injury:

• Abnormal gait
• Bowel/bladder habits
• Expression of pain
• Neurological changes
• Abnormal tendon reflexes