For Parents
Newly Diagnosed?
A message from Theresa Moxley, President Coffin-Lowry Syndrome Foundation
Register with the Coffin-Lowry Syndrome Foundation
Episode 47 – Coffin Lowry Syndrome Foundation
This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you’ll hear an interview with Theresa Moxley, President of the Coffin-Lowry Syndrome (CLS) Foundation. Theresa sits down with Sanford Research personnel and discusses CLS to include the role the Foundation plays in assisting families. She also discusses the importance of families with CLS to register with CoRDS. In this podcast, Theresa helps to raise awareness of CLS one of 7,000 rare conditions. Rare conditions affect 1 in 10 people worldwide.