Events
CLS Family Gatherings
Every summer or every other year, a CLS family hosts a CLS Family Gathering that is typically held in the host families home town or nearby. The first Family Gathering was hosted by Mary and Sam Painter, David’s parents, in 2014 in Augusta, GA. Thanks to Mary and Sam Painter for beginning this wonderful tradition.
The Coffin-Lowry Syndrome Family Gathering is one of the most important gatherings a family with child with CLS can attend. To be able to know what to even anticipate, the rest of your life, is priceless. This gathering of CLS families allows experienced families to meet with newly diagnosed families and help them to understand and create a truly valuable relationship for years to come.
With your donations, the CLS Foundation helps fund these events. Attending a Family Gathering is a great opportunity to meet other parents and individuals with CLS. Most people have never meant another person with CLS until they attend one of these events. If you would like to financially support upcoming Family Gatherings, please consider making a tax deductible donation to the CLS Foundation.
Check out the Upcoming Events as well as our Past Events below. Email clsfoundation@outlook.com if you are interested in hosting an event or fundraising activity in your community. If you would like additional information regarding attending a future CLS Family Gathering, please contact clsfoundation@outlook.com.
CLS Talks
Every quarter, the CLS Foundation hosts a zoom meeting called ‘CLS Talks’ for parents led by parents. Each meeting is a specific top of interest to the parent presenters. Check out our upcoming events to participate in future CLS Talks session. You can find links to past CLS Talks recordings in the Past Events section. Check them out. These sessions are also a great way to meet other parents.
